People living with sickle cell disease (SCD) are to proceed with caution if they have decided to fast during Ramadan, as the practice can put significant strain on the body and, in severe cases, may even be life-threatening.
Many patients are eager to fast, as it is one of the pillars of Islam and a way to grow spiritually and feel closer to God.
However, Bahrain Sickle Cell Society chairman Zakariya Al Kadhem, who also lives with the condition, emphasises that anyone advised not to do so should refrain.
“I understand that fasting is important for feeling connected to God during the holy month and experiencing its spiritual benefits; however, it is not suitable for everyone,” he told the GDN.
“Especially for SCD patients, our bodies age quicker, and not eating and drinking during the day puts severe stress on us.
“For example, I am in my mid-50s, but my body feels as it is 75, which is why I haven’t fasted for the past 17 years.
“We need plenty of water just to prevent blood blow complications, which is difficult to maintain during the month.”
SCD is a genetic condition that results from mutations in the gene holding the information to produce the beta-chain of haemoglobin (the molecule in our body that carries oxygen through the body).
The disease leaves patients prone to a number of acute and chronic health problems such as infection, attacks of severe pain known as ‘sickle-cell crisis’ and stroke.
Offering reassurance to those who may feel left out if they are unable to abstain from food and drink during the holy month, he emphasised that Ramadan is about more than simply abstaining from food and drink.
“It is about self-improvement, charity and building stronger relationships,” he said, stressing that it should not come at the cost of one’s health or cause further harm to the body.
“I have seen colleagues insist on fasting despite medical advice, and tragically, some have passed away because of it.
“This causes immense suffering, not only for the patients but also for their families, who instead of enjoying Ramadan, are left to grieve.”
He urged families to prioritise safety and plan carefully. “Family members do not want to spend this time in hospitals; they want to celebrate Eid and cherish happy moments together.
“That is why I advise people to consult their doctors, undergo proper blood tests, and make informed decisions about whether fasting is safe.”
Mr Al Kadhem added that since he cannot fast, he dedicates his time to educate others about SCD and raise awareness, helping people make informed choices and empowering them to educate others as well.
Throughout the year, he has travelled all over the world to hold talks in the UK, US, Oman, Saudi Arabia among others.
Around 9,000 people in Bahrain live with SCD. In 2023, the country successfully raised the average life expectancy for SCD patients to 65 and approved a new medication that can be administered to children from the age of five, offering hope for better management of the disease.
julia@gdnmedia.bh
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